
Alexandra Bright, Research Nurse
On 16th March we hosted a’ Mitochondrial Research Matters’ dissemination event where mitochondrial patients and their relatives/carers from the North East region were invited to celebrate their involvement in research.
Thanks to their ongoing involvement, we have been able to engage in ground breaking research, have a better understanding of mitochondrial disease and how it affects the lives of people living with a mitochondrial diagnosis.
The event afforded us the opportunity to showcase some of the most recent clinical research that had been conducted by the team in Newcastle and how taking part in the mitochondrial cohort (database) helps with laboratory research, identifying clinical trends and what our plans are to continue with this work in the future.
The event proved popular with patients and their families/carers as it enabled meeting and networking with other mitochondrial patients and the opportunity to liaise with the wider research team. The event also raised awareness of all aspects of our research, and afterwards patients and their families said that they felt better informed and that their contributions to research had been useful and valued.